Jen, I just wanted to comment on this. No matter what, I don't think you can prepare yourself for when the time comes. It won't help, and you may regret it. So please, enjoy this time as best you can, cherish every day, and try not to think about the future. I had about 5 days when I knew the exact day and time Riley was going to die, and I spent way too much of it being sad and trying to prepare myself. Now I wish I had enjoyed every last second we had together. You are going to be sad when the time comes, there is no point in being sad ahead of time (I know this is way easier said than done).
I am so glad that Neyla is still doing well, I hope everyone dealing with this horrible disease has a lot more good times ahead