Guest goofydog Posted December 13, 2011 Share Posted December 13, 2011 At my request, after Get Em's lump histopathology came back as hemangiopericytoma, my vet sent a consult request to OSU through the site on November 9th. She hasn't had a response to date. I realize they have a very busy practice and there was the Thanksgiving holiday tossed in the mix, however 6 weeks seems a bit long to wait. Does anyone know how much longer we may need to wait to hear something? TIA Toni Quote Link to comment Share on other sites More sharing options...
Charlies_Dad Posted December 13, 2011 Share Posted December 13, 2011 Have your vet or you tried to call? I thought they had a contact number as well. I would also try e-mail because that does seem like a long time. Quote Kyle with Stewie ('Super C Ledoux, Super C Sampson x Sing It Blondie) and forever missing my three angels, Jack ('Roy Jack', Greys Flambeau x Miss Cobblepot) and Charlie ('CTR Midas Touch', Leo's Midas x Hallo Argentina) and Shelby ('Shari's Hooty', Flying Viper x Shari Carusi) running free across the bridge. Gus an coinnich sinn a'rithist my boys and little girl. Link to comment Share on other sites More sharing options...
Riverhound Posted December 13, 2011 Share Posted December 13, 2011 I waited less than a week. I'd try again. Quote Masterful Joe and Naughty N Nice Link to comment Share on other sites More sharing options...
Guest goofydog Posted December 13, 2011 Share Posted December 13, 2011 Thanks Kyle and Riverhound. I'll pull the number and give them a shout tomorrow. I did ask my vet to check her 'spam' folder too, just in case, but there was nothing there. Quote Link to comment Share on other sites More sharing options...
tbhounds Posted December 14, 2011 Share Posted December 14, 2011 I'm sure your request for a consult became lost in the shuffle. I would resubmit or give them a holler tomorrow. Just an FYI those tumors are not uncommon and rarely met but, depending on the location of the mass it's not always possible to achieve clean margins. Was it located on a limb? Quote Link to comment Share on other sites More sharing options...
vjgrey Posted December 14, 2011 Share Posted December 14, 2011 My initial consult request (also sent on November 9th oddly enough) was lost in the shuffle. A few weeks later, after Gabe started chemo, I called and then submitted a second request. I received a response to that one within 24 hours. Quote Valerie w/ Cash (CashforClunkers) & Lucy (Racing School Dropout)Missing our gorgeous Miss Diamond (Shorty's Diamond), sweet boy Gabe (Zared) and Holly (ByGollyItsHolly), who never made it home. Link to comment Share on other sites More sharing options...
Guest goofydog Posted December 14, 2011 Share Posted December 14, 2011 I'm sure your request for a consult became lost in the shuffle. I would resubmit or give them a holler tomorrow. Just an FYI those tumors are not uncommon and rarely met but, depending on the location of the mass it's not always possible to achieve clean margins. Was it located on a limb? You're right about the mets rate. From the research we did it looks like only about a 25% return, usually at the same site, with a mets rate of 2%, and survival time of 118 weeks. The lump appeared on his right shoulder Thursday night before I was taking him in on Friday to discuss trying to remove his ruptured saliva gland and we decided she would take the lump while he was anesthesized. Dr. Bradley felt she had clean margins at the time (it was anchored in the muscle and she took what she thought was enough mass). Then the path report came back stating that tumor cells were evident to the margins. Once we knew what it was and did more research we found that this cancer sends small tendrils into the surrounding tissue that can't be seen by the naked eye it became a new ballgame. Further research revealed that this particular cancer doesn't respond well to systemic chemo, however there might be a clinical trial of a chemo that is injected directly into the tumor, or excision site, that had shown some degree of success. Oddly enough this trial drug is named either 5FU or FU5. This trial was why I asked Dr. Bradley to do the consult. I'll reach out to OSU tomorrow to see if they can locate the original consult request or if a new one needs to be submitted. Toni My initial consult request (also sent on November 9th oddly enough) was lost in the shuffle. A few weeks later, after Gabe started chemo, I called and then submitted a second request. I received a response to that one within 24 hours. I'm gald your second request got a fast response. I'll be contacting OSU tomorrow to see if a 2nd request needs to be sent for us also. Best wishes for Gabe and his treatment. Quote Link to comment Share on other sites More sharing options...
MaryJane Posted December 14, 2011 Share Posted December 14, 2011 I heard back within 48 hours which I thought was very quick knowing how busy they are. I might suggest that you submit again. Quote Link to comment Share on other sites More sharing options...
winnie Posted December 14, 2011 Share Posted December 14, 2011 I heard back within 48 hours which I thought was very quick knowing how busy they are. I might suggest that you submit again. About 48 hours here too... and ditto to submitting the request again. Quote Laura with Celeste (ICU Celeste) and Galgos Beatrix and Encarna The Horse - Gracie (MD Grace E) Bridge Angels Faye Oops (Santa Fe Oops), Bonny (Bonny Drive), Darcy (D's Zipperfoot) Link to comment Share on other sites More sharing options...
joejoesmom Posted December 15, 2011 Share Posted December 15, 2011 I'm sure your request for a consult became lost in the shuffle. I would resubmit or give them a holler tomorrow. Just an FYI those tumors are not uncommon and rarely met but, depending on the location of the mass it's not always possible to achieve clean margins. Was it located on a limb? You're right about the mets rate. From the research we did it looks like only about a 25% return, usually at the same site, with a mets rate of 2%, and survival time of 118 weeks. The lump appeared on his right shoulder Thursday night before I was taking him in on Friday to discuss trying to remove his ruptured saliva gland and we decided she would take the lump while he was anesthesized. Dr. Bradley felt she had clean margins at the time (it was anchored in the muscle and she took what she thought was enough mass). Then the path report came back stating that tumor cells were evident to the margins. Once we knew what it was and did more research we found that this cancer sends small tendrils into the surrounding tissue that can't be seen by the naked eye it became a new ballgame. Further research revealed that this particular cancer doesn't respond well to systemic chemo, however there might be a clinical trial of a chemo that is injected directly into the tumor, or excision site, that had shown some degree of success. Oddly enough this trial drug is named either 5FU or FU5. This trial was why I asked Dr. Bradley to do the consult. I'll reach out to OSU tomorrow to see if they can locate the original consult request or if a new one needs to be submitted. Toni My initial consult request (also sent on November 9th oddly enough) was lost in the shuffle. A few weeks later, after Gabe started chemo, I called and then submitted a second request. I received a response to that one within 24 hours. I'm gald your second request got a fast response. I'll be contacting OSU tomorrow to see if a 2nd request needs to be sent for us also. Best wishes for Gabe and his treatment. I just wanted to say that Dr. Couto at OSU has been using a local injection of 5FU into the tumor site of soft tissue cancers for a number of years. He has had very good success. It is actually fairly inexpensive and readily available, so if you don't get into a trial, don't worry. The drug is actually quite cheap. The sedation and the administration is what costs. Since the 5FU in it's normal state is very thin and would clear the tumor site very quickly, there is a special "mixing" procedure that is followed. The 5FU and a medical grade oil is put into a "mixing" syringe. As it goes through the syringe and is mixed, it becomes sort of like whipped cream. This is injected into the tumor site and stays in place for a number of hours. The dog needs to be sedated because it "burns" as it is injected. There are very few side affects and these tend to be local (such as localized redness). In the case that I was involved in, a spindle cell cancer, the dog received 4 treatments. OSU's goal is to respond to consult requests within 3 business days. I am sure that your request got lost somehow. Jane Quote Link to comment Share on other sites More sharing options...
maggiespet Posted December 15, 2011 Share Posted December 15, 2011 Toni - I'm sorry I must have missed much of this. Many prayers for the Pirate. Quote http://i57.photobucket.com/albums/g240/mtbucket/siggies/Everyday-2.jpgJane - forever servant to the whims and wishes of Maggie (L's Magnolia of JCKC) and Sam the mutt pup.[/b] She's classy, sassy and a bit smart assy. Link to comment Share on other sites More sharing options...
Guest goofydog Posted December 15, 2011 Share Posted December 15, 2011 Toni - I'm sorry I must have missed much of this. Many prayers for the Pirate. Thank you Jane! I've been remiss in updating you too I spoke to Dr. Bradley yesterday afternoon and she is going to resubmit the consult request and let me know when she gets a response. Joejoesmom, thanks so much for the info on the chemo and how it is used. Do you know if I would have to wait and see if the tumor returned to have it injected or if it could be placed in the tumor excision site? Since there weren't clean margins and the path report stated tumor cells visable to the margins I am wondering if a proactive approach might be used. Quote Link to comment Share on other sites More sharing options...
joejoesmom Posted December 15, 2011 Share Posted December 15, 2011 Toni - I'm sorry I must have missed much of this. Many prayers for the Pirate. Thank you Jane! I've been remiss in updating you too I spoke to Dr. Bradley yesterday afternoon and she is going to resubmit the consult request and let me know when she gets a response. Joejoesmom, thanks so much for the info on the chemo and how it is used. Do you know if I would have to wait and see if the tumor returned to have it injected or if it could be placed in the tumor excision site? Since there weren't clean margins and the path report stated tumor cells visable to the margins I am wondering if a proactive approach might be used. If it is like the spindle cell case I was involved with, you definitely want to do it soon after the gross tumor is removed. The success rate is significantly better if there is no gross tumor visible. Dr. Couto uses it after a soft tissue cancer is removed when they couldn't get clear margins. I don't remember how long they waited after the gross tumor was removed, but I assume they waited until it was healed enough to remove the sutures. Jane Quote Link to comment Share on other sites More sharing options...
krissn333 Posted December 17, 2011 Share Posted December 17, 2011 This is really interesting....the lump that Ace recently had removed from her leg came back as a spindle cell carcinoma. When you say it's inexpensive, how inexpensive are we talking? Quote Kristin in Moline, IL USA with Ozzie (MRL Crusin Clem), Clarice (Clarice McBones), Latte and Sage the IGs, and the kitties: Violet and Rose Lovingly Remembered: Sutra (Fliowa Sutra) 12/02/97-10/12/10, Pinky (Pick Me) 04/20/03-11/19/12, Fritz (Fritz Fire) 02/05/01 - 05/20/13, Ace (Fantastic Ace) 02/05/01 - 07/05/13, and Carrie (Takin the Crumbs) 05/08/99 - 09/04/13. A cure for cancer can't come soon enough.-- Link to comment Share on other sites More sharing options...
robinw Posted December 17, 2011 Share Posted December 17, 2011 I waited for a while. I didn't receive a response until I contacted Dr. Couto directly. Quote Xavi the galgo and Peter the cat. Missing Iker the galgo ?-Feb.9/19, Treasure (USS Treasure) April 12/01-May 6/13, Phoenix (Hallo Top Son) Dec.14/99-June 4/11 and Loca (Reko Swahili) Oct.9/95 - June 1/09, Allen the boss cat, died late November, 2021, age 19. Link to comment Share on other sites More sharing options...
Tallgreydogmom Posted December 17, 2011 Share Posted December 17, 2011 Last time I spoke with Dr Couto he said the Phone system (which would include internet) does not really work that well somedays. So do not wait, call them or re-submit. It is a problem they have no control over and just have to live with. Quote Then God sent the Greyhound to live among man and remember. And when the Day comes, God will call the Greyhound to give Testament, and God will pass judgment on man. (Persian Proverb) Link to comment Share on other sites More sharing options...
Guest Fasave Posted December 18, 2011 Share Posted December 18, 2011 This is really interesting....the lump that Ace recently had removed from her leg came back as a spindle cell carcinoma. When you say it's inexpensive, how inexpensive are we talking? I started the 5FU treatment with my boy. The cost was approximately $200/treatment so a total of $800 approximately. Quote Link to comment Share on other sites More sharing options...
krissn333 Posted December 18, 2011 Share Posted December 18, 2011 Thanks! I'll ask about it when we go in for Pinky's next chemo Quote Kristin in Moline, IL USA with Ozzie (MRL Crusin Clem), Clarice (Clarice McBones), Latte and Sage the IGs, and the kitties: Violet and Rose Lovingly Remembered: Sutra (Fliowa Sutra) 12/02/97-10/12/10, Pinky (Pick Me) 04/20/03-11/19/12, Fritz (Fritz Fire) 02/05/01 - 05/20/13, Ace (Fantastic Ace) 02/05/01 - 07/05/13, and Carrie (Takin the Crumbs) 05/08/99 - 09/04/13. A cure for cancer can't come soon enough.-- Link to comment Share on other sites More sharing options...
joejoesmom Posted December 18, 2011 Share Posted December 18, 2011 I know inexpensive is a relative term. It is definitely inexpensive when compared to the 20 radiation treatments that is the more traditional treatment. He has had similar success as radiation. I think OSU charges about $200 a treatment also. Jane Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.